Know that you’re never alone. There are others who have had a pulmonary embolism (PE) who have the same questions, doubts, and fears as you do. Explore our curated list of groups where you can go to discuss topics relevant to PE, its treatment, and cardiovascular health.
AHA Support Network
This support network from the American Heart Association lets you share your story and connect with other people who have had a pulmonary embolism (PE), find answers to your questions, and learn more about your condition.
The American College of Cardiology offers an up-to-date, authoritative resource for people who have had a pulmonary embolism (PE) to help prevent, treat, and manage their condition. In addition to information about PE, you can also find guides to help you understand who’s who on your care team and how to interpret clinical studies, as well as the latest news and events about PE.
A vascular disease support and discussion community. Search and join topics about pulmonary embolism (PE), or start a new one by asking a question or sharing your story.
North American Thrombosis Forum (NATF)
A nonprofit organization dedicated to increasing awareness and education about pulmonary embolism (PE) and other blood clot disorders. In addition to information and resources about your condition, you can also find a NATF support group in your area or join monthly online meetings moderated by healthcare providers with expertise in blood clot treatment and management.
Stop The Clot®
The National Blood Clot Alliance is a nonprofit organization focused on providing information to help patients detect, treat, and prevent blood clots, including pulmonary embolism (PE). Find comprehensive blood clot information, read others’ blood clot stories or share your own, or join online discussions with other people who have had PE blood clots.
Janssen CarePath Patient Support is another resource that you can take advantage of today. It offers you helpful information and tools to help you better understand your condition and stay with the treatment plan your healthcare professional prescribes.